Skip to main content

Are We Afraid to Let Go of Food Allergies?

I'm disheartened.

A couple of weeks ago, I sunk a lot of time into researching, and then explaining the value and limits of component testing. I was so excited at the end of my research because I realized this test has the potential to change the lives of thousands of families who believe their child has a food allergy when they really don't.

Think about it! 10% of kids test positive to peanuts, but only 1-2% have a demonstrable reaction. Why in the world aren't those families who have never experienced a reaction jumping up and down in joy and rushing out to get this test? 

realize it's not cheap, so clearly money is a factor. But the reason I'm disheartened is that I saw the first of probably many "not ready for prime time" type messages make the rounds of the chat boards over the last couple of days. It involved one case where a child had a reaction to peanut despite a low Ara h 2 measurement

The boards were peppered with words like "disappointing" and "researchers don't seem to know a whole lot" and "the test cannot tell you if you are safe from anaphylaxis."

All this on the basis of one child, one reaction.

YES, this is a test, and tests are not perfect. Yes, there are exceptions to every test. Yes, a food challenge will definitely be required if the test shows low Ara h 2. Yes, some kids will have the test done, show low Ara h 2 and still fail a challenge. But does it really make sense to sit on the sidelines, waiting for the test to be perfect, and potentially miss out on years of worry-free childhood? 

Honestly, it seems to me that people are looking for reasons to avoid this test, to talk themselves out of it. There was such a palpable rush of relief from so many people. Yay! We don't really need to do it yet!

Why? Why would that be? I have asked myself over and over again this week. Are parents really so phobic about the idea of a subsequent food challenge that they are willing to just bypass the test altogether, rather than experience a small risk for a major gain?

It makes you start to wonder - which is the real disease, the phobia or the allergy? If a child has truly never experienced a reaction to peanut, yet the mom is so phobic that she won't even consider a food challenge in the event of a pass on component testing...which disorder is really the bigger issue for the family?

I know it's scary. We've been through at least a dozen challenges. My son has now failed three of them. It's not a pleasant day. But a curious thing has happened as a result: we no longer let the anxiety master us. A research study that examined food challenges and anxiety showed the same thing: pass or fail, the anxiety of the families involved was reduced after a food challenge.

How we think about these tests, talk about them, post about them on-line  all can add to or reduce our anxiety. We can talk ourselves out of even the smallest risk, and of course it's easier when others around us are also looking for ways to talk themselves out of risk.

Don't do it. If you have a child with a peanut allergy who's been diagnosed solely by test results, don't talk yourself out of the test because you dread the challenge. Don't live like this another day.

I read a crazy science fiction story as a child that left an indelible mark on me. The premise was that a ship had crash-landed on a planet with very high levels of radiation. The survivors of the crash all aged at a dramatic rate as soon as they landed, but still managed to reproduce. Their descendants also had shortened life spans - just 10 days from birth to death.

Those ten days were spend scrambling for resources; in particular, trying to obtain caves with better shielding so the tribe who won the battle could live lives a few hours longer. But three young warriors put their heads together and talked about how stupid and pointless it all was. They had heard a rumor that the ship that brought humans to the planet in the first place was still out there somewhere. Didn't it make sense to take a risk and strive to locate the ship, rather than dying in pointless skirmishes?

At the end of the story, they do find the ship and manage to get inside. It's shielded from the radiation. And, in that moment, they look at each other and realize that the rules have been completely reset and their lives have essentially started over.

There are so few of those types of opportunities in life. Component testing could be that kind of a moment for many families out there.

So many of us would give anything to be able to say "What do we do, now that he's not allergic?" It feels like mockery that others who really have that opportunity seem to be rejecting the chance.

Follow me on Facebook or Twitter  

Popular posts from this blog

Puas Rental dan Sewa Mobil Di Area Cirebon

Puas Rental Mobil Cirebon . Puas Rent car ialah perusahaan transportasi penyedia layanan rental mobil di Cirebon. Puas Rent Car ialah bagian dari perusahaan Puaspark – taman rekreasi keluarga sangat terjangkau di Cirebon Timur. Kami pun melayani lokasi Bekasi sampai Seluruh Cirebon. Armada kami ialah mobil-mobil dalam situasi terawat dan pun mobil-mobil keluaran baru. Dengan opsi mobil yang kami sediakan paling variatif dan harga yang paling kompetitif di Cirebon.
Contact Puas Rental Mobil

Bagi Kami Kepuasan Konsumen nomer Satu..
Untuk Pemesanan klik Rental Mobil Avanza Di Area Cirebon
Karena Disitu Adalah Website Resmi Dari Puas Rental Mobil Cirebon

Puas Rent Car Cirebon menawarkan guna Anda seperti: Avanza. Kami melayani penyewaan mobil guna harian maupun bulanan. Kami meluangkan supir. kita juga dapat menyewa mobil-mobil kami tanpa supir.

Menjadi perusahaan transportasi penyedia jasa penyewaan mobil yang handal. Menjadi parner transportasi terbaik Anda. Terdepan melayani sewa / ren…

inaugural post

The Starker Arts Garden for Education finally has its very own blog. There's so much happening out at the garden that we just couldn't keep all the news from you any longer!

Stay tuned to this blog for updates on SAGE, upcoming event info, sustainable gardening tips, and other good grub fresh from the garden!  Feel free to subscribe to our blog by entering your e-mail address into the "Follow by E-mail" bar to the right.

The Food Allergy Herbal Formula-2 (FAHF-2) Laundry List

So in all the time I've been writing about our experience with FAHF-2, I have never done a comprehensive post with all the links/info I've found over the years. Consider the situation rectified! I'll add to this as I find new sources. If you have good ones, please feel free to add them to the comments as well.

My FAHF-2 Posts
FAHF-2 Trials In Chicago!

We're In

BTDT, Got the FAHF-2 Food Allergy Clinical Trial T-Shirt

Brief FAHF-2 Update

Halfway There...But the Second Half Is All Uphill

FAHF-2: The Holy Grail?

Waiting in the Wings for the Show to Begin

FAHF-2 Clinical Trial Summary

Other People's FAHF-2 Experiences (from around the web)Chinese pharmacy vs. through Dr. Li

For severe eczema/MRSA

New York Times article

For asthma (Vitality magazine)

An asthma patient's personal experience

Description of Dr. Li's treatment plan

What Is FAHF-2?Patent application (contains all ingredients)

Phase 1 Clinical Trial Report (has very specific info about formula ingredients)

Yellow Empero…