Skip to main content

Halfway There...But The Second Half Is All Uphill

Yesterday was our first of two food allergy challenges for FAHF-2.

This is going to be a very quick update because the challenge was completely uneventful. My son had a full work-up in the morning, including cardiac, spirometry and many, many Vacutainer® tubes of blood. I asked if they could share anything about RAST levels, since we've had a blood draw every 6 weeks, but this info is apparently being consolidated at Mt. Sinai and will only be shared after the study completes.

After the work-up, he started on the applesauce. (If you haven't read about the FAHF-2 clinical trial before, here's a link that describes the process in excruciating detail.) By Dose 6 or 7, we were all chatting, reading, was obvious nothing was going to be happening. Placebo.

Early on in the morning, I had asked our study manager what type of results they had seen to date. She said that, of the three kids who had completed the second set of challenges, two were able to achieve a four-fold increase in tolerance. (The third probably had placebo, since it's a 2-to-1 ratio of real medication to placebo in the study.)

She also confirmed that I was close on my estimation of the peanut my son had tolerated at the last set of challenges  490 mg in all, about 1-1/2 to 1-3/4 peanuts. I asked if that was typical for the study and she said he actually reacted sooner than most of the kids  for many of the kids, it took slightly more to set off the reaction. However, my son was a "slow reactor" according to the clinicians, so the time between his doses was increased to half an hour during the first challenges to help ensure he didn't suddenly reach a critical point and have a really bad reaction. Two of the other kids did have bad reactions and her theory was that it may have been related to the dose hitting them all at once.

Here's the bad news: my son's skin tests are actually more reactive now than they were when we started the trial. Does this matter? The trial director shrugged it off, saying that skin tests are notoriously unreliable to start with. However, it made us nervous. Over the last month or so, my son has also noticed a reduced tolerance to "may contain" milk foods that he had previously been eating (with doctor approval) without problem.

Did the medicine actually reduce his tolerance? Has he spent 6 months and taken 4600 pills, only to discover it's actually worsened his allergies?

It's also possible the medicine needs more time to kick in. (And, if we want to be irrationally hopeful, it's possible the applesauce he had yesterday was not placebo and that he's cured. Sure.)

I guess we'll know more after next week. Even if you disagree with me, please think good thoughts for him. He's just a kid and a very courageous one.

Popular posts from this blog

Puas Rental dan Sewa Mobil Di Area Cirebon

Puas Rental Mobil Cirebon . Puas Rent car ialah perusahaan transportasi penyedia layanan rental mobil di Cirebon. Puas Rent Car ialah bagian dari perusahaan Puaspark – taman rekreasi keluarga sangat terjangkau di Cirebon Timur. Kami pun melayani lokasi Bekasi sampai Seluruh Cirebon. Armada kami ialah mobil-mobil dalam situasi terawat dan pun mobil-mobil keluaran baru. Dengan opsi mobil yang kami sediakan paling variatif dan harga yang paling kompetitif di Cirebon.
Contact Puas Rental Mobil

Bagi Kami Kepuasan Konsumen nomer Satu..
Untuk Pemesanan klik Rental Mobil Avanza Di Area Cirebon
Karena Disitu Adalah Website Resmi Dari Puas Rental Mobil Cirebon

Puas Rent Car Cirebon menawarkan guna Anda seperti: Avanza. Kami melayani penyewaan mobil guna harian maupun bulanan. Kami meluangkan supir. kita juga dapat menyewa mobil-mobil kami tanpa supir.

Menjadi perusahaan transportasi penyedia jasa penyewaan mobil yang handal. Menjadi parner transportasi terbaik Anda. Terdepan melayani sewa / ren…

The Food Allergy Herbal Formula-2 (FAHF-2) Laundry List

So in all the time I've been writing about our experience with FAHF-2, I have never done a comprehensive post with all the links/info I've found over the years. Consider the situation rectified! I'll add to this as I find new sources. If you have good ones, please feel free to add them to the comments as well.

My FAHF-2 Posts
FAHF-2 Trials In Chicago!

We're In

BTDT, Got the FAHF-2 Food Allergy Clinical Trial T-Shirt

Brief FAHF-2 Update

Halfway There...But the Second Half Is All Uphill

FAHF-2: The Holy Grail?

Waiting in the Wings for the Show to Begin

FAHF-2 Clinical Trial Summary

Other People's FAHF-2 Experiences (from around the web)Chinese pharmacy vs. through Dr. Li

For severe eczema/MRSA

New York Times article

For asthma (Vitality magazine)

An asthma patient's personal experience

Description of Dr. Li's treatment plan

What Is FAHF-2?Patent application (contains all ingredients)

Phase 1 Clinical Trial Report (has very specific info about formula ingredients)

Yellow Empero…

Liberal, Overbearing, New Age, Alternative Medicine Food Allergy Moms

My mom called the other night.

"I talked to your cousin Donna last night. I told her she should call you. She's into a lot of the same stuff you're into."

"Um...what stuff would that be, Mom?"

"You know...all that stuff about the bees and GMOs and vaccines, honey. I told her you knew a lot about it and would be happy to talk with her."

YIKES! Since when did having a kid with food allergies automatically qualify me for the willing-to-accept-every-random-theory club?

As you guys know, I do a lot of reading and I have come to think there may be something to some of the alternative theories out there, particularly around pesticides and antibiotics killing off symbiotic gut bacteria. But I've also spent 25 years of my career firmly submerged in Western medicine and my mother knows this. So what the heck happened here?

A week later, I wondered it all over again as I read this article on Slate. It's apparently debunking an Elle magazine story that link…